Letter from EFI President, Alan Minskoff
Epilepsy has been part of my life since 1978 when at age 31
I had my first seizure. I am one of those fortunate people whose
epilepsy is controlled by medication. My commitment to helping
those with seizures comes from my brain and heart.
Earlier this year I received an email from Epilepsy Foundation
of America (EFA) entitled "Epilepsy: More Common than You
Think" that detailed just how prevalent seizure disorders are in this
country and around the world. Some surprising statistics include:
"Epilepsy is the third most common neurological disorder in the
United States after Alzheimer's disease and stroke."
More than 2,700,000 people in the U.S. and 50 million
worldwide are affected by one of more than 40 syndromes defined
as epilepsy. Two hundred thousand Americans are diagnosed with
epilepsy each year and an estimated 25,000 to 50,000 will die this
year of seizures and related causes. Between 60 and 70 percent of
people with epilepsy are able to be treated with antiepileptic
medication. Sadly of "major chronic medical conditions epilepsy is
among the least understood even though one in three adults knows
someone with the disorder."
People who suffer from
seizure disorders continue to
face discrimination in the
workplace, in schools and
socially. EFI's ongoing task is
to help keep those with
epilepsy out of the margins,
to ensure Idahoans have
emergency funds for
medication and to educate the
public about seizures.
Through our offices and staff
in Boise, Idaho Falls and
Coeur d'Alene, we continue to work to help those with seizures and
their families, hold educational programs that attract audiences
from throughout the state and the region and take our puppet show to schools to teach children and adults how to respond to someone
having a seizure.
Now St. Luke's Regional Medical
Center, our longtime sponsor and ally in the
epilepsy movement, has made a dramatic
investment in the care of those who suffer
from seizures. The soon-to-be opened Idaho
Comprehensive Epilepsy Center at St.
Luke's in Boise heralds new opportunities
in treatment and technology. Under the
directorship of Dr. Robert Wechsler, M.D.
and Ph.D., the center is the first of its kind
in the Gem State. We welcome Dr.
Wechsler and thank St. Luke's RMC for
taking this innovative and essential step.
My first year as the president of the
Epilepsy Foundation of Idaho has been
challenging and fulfilling: We had our most
successful St. Valentine's Day Massacre
event ever; despite reduced funds our
programs and events are reaching
throughout Idaho, and we have redoubled
our efforts in difficult economic times to
maintain the commitment to excellence that
has been the hallmark of our organization.
Everything costs money and candidly
we need contributions now more than ever.
Your donations help us serve Idahoans with
epilepsy.
Alan Minskoff is the director of the
journalism program
at Albertson College of
Idaho
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